My daughter, Angela, and her partner, Tim, got married yesterday. Big deal, you say. Many of us have daughters who got married, and some of them may have tied the knot yesterday.
My daughter’s wedding was particularly poignant because she suffers from Motor Neurone Disease.
She was diagnosed four months ago, but she began suffering speech and swallowing difficulties as far back as Christmas. Needless to say, the news was devastating for the entire family.
She’s typical of the Robinson gene in that she’s stubborn, determined and fight to the last. That single-mindedness prompted her to defy her condition and WALK into the wedding room at Leeds Town Hall. And as her father, it was my pleasure, my absolute joy, to lend her my arm in support of that walk.
Her daughters, Victoria and Hannah, pulled out all the stops to see that their mum had a special day, right down to arranging a Rolls Royce for the journey to the venue and the return to the reception.
Many of Angela’s friends (and Tim’s of course) turned out for them. Her brothers turned out too, David and his partner Sarah travelling in from Pudsey on the outskirts of Bradford, Colin and his wife Sally, making the journey from Coventry, and overall everyone had an enjoyable afternoon.
There was a downside. Everyone had to listen to a three-minute address from the father of the bride… Me.
Not that there’s anything wrong with my ability to deliver a short speech, but even at my quietest I’m a noisy bugger, and my spec jokes are not always as funny as I think they are.
If I’m making a lot of this it’s not in the pursuit of ‘aww, how lovely’ reactions, and it’s certainly not in search of sympathy. The whole family is now dedicated to raising awareness of this terrible disease.
Angela has been diagnosed with an aggressive form of MND known as Progressive Bulbar Palsy. Statistically, the life expectancy of sufferers is six months to three years.
There is no cure. No one knows what causes it. But we, as a family, and only too aware of its devastating impact.
Having said that I offer no apologies for wishing a long and happy marriage for my daughter, Angela, and her new husband, Tim.
Comments are open and welcome.
My daughter blogs about her illness at: https://angie1926.wordpress.com/
And her daughter,Victoria has made efforts at raising awareness on her blog at: https://daughterofmnd.wordpress.com/
If you would like to learn more about Motor Neurone Disease, go to: https://www.mndassociation.org/